In a landmark initiative marking World AIDS Day on 1 December 2023, Positive Women Inc., in collaboration with Māori, key HIV sector agencies, and individuals living with HIV, has unveiled the groundbreaking ‘Ngā Taipakeke o te Urutā HIV – Ageing with HIV Research Report’. This pivotal study marks a significant milestone in understanding and addressing the complexities faced by those ageing with HIV in Aotearoa, New Zealand.
The landscape of HIV has dramatically shifted over the past two decades. With effective treatment, HIV has transitioned from a fatal disease to a chronic condition, allowing those affected to lead longer, healthier lives. Presently, an astonishing 61% of people living with HIV in Aotearoa are over 50 years old, a figure expected to rise to 72% by 2030. While living longer, this ageing demographic faces accelerated aging and an increased risk of age-related comorbidities.
Despite these advancements, gaps in support services and workforce capabilities to cater to the ageing HIV population have been identified. Reports like the Aotearoa New Zealand People Living with HIV Stigma Index (2020), the NZ Aged Care Association (2022), and the Office of the Auditor-General (2014) highlight these critical deficiencies. This neglect stands in contrast to the Government’s Better Later Life – He Oranga Kaumātua 2019 to 2034 strategy, which emphasizes diversity and uniqueness.
The ‘Ngā Taipakeke o te Urutā HIV – Ageing with HIV Research’ is a community-led initiative, aligning with the 2023 World AIDS Day theme of “LET COMMUNITIES LEAD.” Jane Bruning, National Coordinator of Positive Women Inc., stresses the unique aspect of the project being led by the community, including Māori, people living with HIV, and HIV sector agencies.
Milly Stewart, Pou Tahuhu of Toitū te Ao, a kaupapa Māori HIV Support organization, highlights the importance of Māori voices in the HIV sector. The collaborative approach of the research ensures that the perspectives of Māori are included and respected.
The report not only provides a detailed exploration of the needs and experiences of those ageing with HIV but also presents key findings across four main themes and thirteen subthemes, each accompanied by specific recommendations.
Positive Women Inc. calls upon the Aged Care sector to engage with this report, which serves as a crucial guide for preparing to meet the needs of people ageing with HIV. The report aims to ensure that individuals with HIV not only survive but thrive with their health, well-being, and dignity intact.
